Complex Regional Pain Syndrome

DavidArchleta4ever Says:

Sep 19, 2009 - My Friend has CRPS from a shot that nicked a nerve...

DavidArchleta4ever Says:

Sep 19, 2009 - ITS NOT ALL IN UR HEAD My friend had got a shot that nicked a nerve and he had gotten CRPS

LittleCazzy Says:

Sep 24, 2009 - OMG I cried all the way through, my best friends little sister has this

rabidmonkeyjoe Says:

Sep 27, 2009 - My mom and grandmother both have C.R.P.S. (they call it R.S.D.) and i have another nuerological condtion that effects the heart called postural orthostatic tachycardia syndrome (P.O.T.S.) apperently suceptability to nervous system fuckups are genetic

greeneyez59 Says:

Oct 1, 2009 - I was diagnosed with RSD in 2001 after a failed back surgery in july 2001. I'm on all the med's, the fentanyl patch, I'm in bed recovering now from a spinal surgery a week ago to have my DCS removed as it no longer worked out for me. I've had it since 2004 and highly recommend it! Medtronics makes it and I would still have it accept one of the leads was sitting on a nerve therefore creating MORE pain. We're NOT crazy, and wouldnt wish this on anyone! The pain is insane!

greeneyez59 Says:

Oct 1, 2009 - I was diagnosed with RSD in 2001 after a failed back surgery in july 2001. I'm on all the med's, the fentanyl patch, I'm in bed recovering now from a spinal surgery a week ago to have my DCS removed as it no longer worked out for me. I've had it since 2004 and highly recommend it! Medtronics makes it and I would still have it accept one of the leads was sitting on a nerve therefore creating MORE pain. We're NOT crazy, and wouldnt wish this on anyone! The pain is insane!

paws1669 Says:

Oct 2, 2009 - i have this and have since i was 16 NEVER push through the intense pain because if you do it is proven to cause the pain to spread more quickly. please see a chronic pain specialist. RND and RSD are outdated, what ppl knew of this disease in WW1 when they first 'found' it. you have to use it of course, stretch excersise, but never just 'push' through! good luck RabidPygmy

paws1669 Says:

Oct 2, 2009 - um every single sensation, thing you see or smell is 'in your head' When you have a disease that causes the brain to malfunction and tells you your leg is basically on fire and being stabbed at the same time, it is real. What you just posted is equivilent of telling someone who is blind because of a tumor in their brain is blind because it's 'just in their head' you should be ashamed of yourself

paws1669 Says:

Oct 2, 2009 - I have CRPS, and it isn't 'just in your head'. Anyone that has the gall to profess that idea is sadly ignorant of nerve diseases. CRPS has several very specific sypmtoms that can be tested and proven with doctors. Its not phycological, its PHYSIOLOGICAL as in physical. its a disease that effects many ppl and doctors have no idea how the nervous system works so they can't fix it. Not undersstood, is NOT the same as not 'real' RabidPygmy

angerdux8 Says:

Oct 5, 2009 - Did Michael get sympathetic nerve blocks? Sometimes PT can restore mobility, but the pain returns. Epiduals given within the first 6months are essential, the sooner the better.

angerdux8 Says:

Oct 5, 2009 - I bulged at disc at L5S1 and it overstimulated the sciatic nerve. I did not get substantive pain meds until I tried to kill myself, and that was 18 months after the onset. All any of the many doctors I saw in the first 3 months had to do was get me a caudal epidural or sympathetic nerve block. This would have calmed the nerve and ended the syndrome. I have been in constant pain for 13 years now. And I have recommended nerve blocks for my mother and my husband with success.

aimeed69 Says:

Oct 5, 2009 - Very well put together video. This sounds so much like me. I have had it since Feb 1999. I am on my 5th SCS for treatment. I wish I never heard of CRPS. God Bless everyone and Hope you all have a pain-free night (well has much of one has we can have)

sturgismom13 Says:

Oct 6, 2009 - My friend has this and I have fibromyalgia.....both the beautiful peoples disease. It takes a long time for anyone to understand the depth of this pain. The changes your life goes through when you have it are devastating in all ways.

melgus99 Says:

Oct 6, 2009 - I agree with "beautiful peoples disease" :-) So very true for both diseases! Take care

atvchick09 Says:

Oct 21, 2009 - i was in a bad atv accident and i was diagnosed with this just recently and its horrible it takes ur life away i went from riding my atv and racing to laying in bed in pain....i couldnt handle the pain at school and its so hard to concentrate and im a girl and its so hard to shave my leg that has this awful condition....when i went to the doc last time when i was diagnosed he was touching my ankle leg and foot just rubing it and i couldnt stand it and my rents couldnt watch him do that to me

melodycass Says:

Oct 27, 2009 - im 19 and had CRPS since i was 10 thanks to raming a bike seat into my talebone and haveing cancer that weaked the nervers. i have leaned toblock out the pain and tell the docters it like a hum of a laptop/computer all the time and to my leavel of pain about a 5 ((normal peoples pain leavel: 8))and i get that all the time. and i have to the shock og my docters learned that there is driffent types of pain like theres time of the month pain and endo pain and lot other pain.

footpain2 Says:

Oct 29, 2009 - i have pain every day all day. think of that . just try to. it is so disturbing..........

tbarnes1000 Says:

Oct 29, 2009 - I suffer from this dreadfull, awfull dibilitating disorder. I have suffered for only 2 1/2 years but it feels like a lifetime. Thank you for the video. For the First time I feel like someone out there understands me. It's hard to discribe and try to make others understand what you go through when 99% of them have never heard of it nor your Dr.'s. Thank you for sharing. You have givin me the courage to STOP being silent. For years I have felt ashamed, weak and embarressed by this condition.

melgus99 Says:

Oct 29, 2009 - I am happy this video has helped you. Best wishes Mel

otanirisa007 Says:

Nov 7, 2009 - my brother has this disease...... I hate to watch him when it gets really bad. he is only 13.

06lydgib Says:

Nov 11, 2009 - hi, i'm 14 and got diagnosed with this disease 2 years ago. I would just like to thank you for this video because now I can make people see that I'm not over exaggerating and this pain I am feeling is truly real. Thanks again. Lydia

Aveskie09 Says:

Nov 11, 2009 - i have this

NurseHottie4You Says:

Nov 13, 2009 - I to have this disease...and unfortunately theres no cure...thanks for this video. It really helps to show people what I going thru!

adunkin2014 Says:

Nov 13, 2009 - i have it too and im also 14. i was diagnosed july 1st 2009. but have had knee problems for 3 years. and some doctors though it was all in my head and i was faking it. my friends or family didn't believe me. but now its good to see that the word RND/RSD is spreading out so every1 can be familiar with it.

ewidhel1 Says:

Nov 17, 2009 - to those of you that are experiencing this disorder there has been some doctors that have had good success in treating this. chiropractic neurologists are the ones to seek out. not all of them might know how to treat this.